Ziggy Jones

FOR IMMEDIATE RELEASE

Universoul Circus Honors The Family of Ikenna “Iffy” Ifedobi @ “Breakfast Under The Big Top”

On Wednesday, Aug. 11, 2010 will be a special day in the life of Iffy Jones-Ifedobi, the seven year old Houstonian, fighting for his life against a rare form of Non-Hodgkin’s Lymphoma. Iffy and his family, will be special guests of UniverSoul Circus during its Breakfast Under the Big Top celebration. There, Iffy and family will have a chance to see circus performers up close, and they’ll get an exclusive tour of UniverSoul’s back lot with Ringmaster Shuckey Duckey.

Date: Aug. 11, 2010
Time: 8:00 a.m.
Where: Under the UniverSoul Circus Big Top
(Butler Stadium |13755 S. Main St | Houston , TX 77035)
Cost: The Breakfast Under The Big Top Event is free to the public and breaks will be served from 7 a.m. – 8 a.m.

Additionally, all of the Radio One Houston stations (Majic 102.1, 97.9 The Box and Parise 92.1) will be broadcasting live from the event to encourage Houstonians to help the family.

Donations Can Be Made:

• At any Unity Bank location under the mother’s name, Shanguala Jones
• Via the PayPal account link on the family’s blog, www.ziggyjones.com
• By mail at P.O. Box 1044, Stafford TX, 77497
• Cash, check, money orders and gift cards accepted in the mother’s name, Shanguala Jones

Visit www.universoulcircus.com for full show times, schedules , and directions. Also follow them on www.facebook.com/universoulcircus or www.twitter.com/usoulcircus .

God is good and Iffy is excited about the event. (more…)

Tags: circus, donations, god, honor, Iffy, Universoul Circus
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We’ve been in the hospital for 4 days now.  What started as a routine visit to the clinic for blood work and CT Scan results has evolved into the biggest fight of Iffy’s life.

I received a call on Friday from Iffy’s oncologist stating that the CT scans did not look good.  They told me that my baby has holes in his skull from the cancer eating away at his bones.  The space between his mouth and nose is nothing but tissue.  They don’t even know how he’s been able to eat.

His sinuses are completely gone, and he has holes in his spine and pelvis.  His trachea has been invaded.  Where he should have at least a diameter of 1 cm in order to breathe, Iffy’s airway is measuring less than 3 mms.  This is even more dangerous because his nose and sinuses are completely blocked. They say his airway could constrict, and he could die at anytime. They want to do a tracheostomy to force open his airway.

His heart rate is dangerously low, and frankly, the doctors don’t know how he’s still going.

BUT I DO.  MY GOD IS AN AWESOME GOD!!!!  MY GOD IS MERCIFUL!!!!  AND MY GOD IS IN CONTROL!!!

In this moment, I beg for your prayers and your positive energy.  I beg you to keep us in your thoughts.  I beg you to pray fervently for my child and the other children here on this floor who are suffering.  I beg for your compassion and your passion, because frankly, this is not a time for apathy or false sympathy.  I am afraid, I am terrified, I am exhausted, and I am lost.  But for Iffy’s sake, I go on.

I thank you for your participation in following our story.  Andy, Kelly, Shar-Day, I love and appreciate you for all you’ve done and continue to do.  Iffy sends his love, and we’ll see you all soon.

Sometimes, God will quiet the storm and soothe the child.  Sometimes, God will let the storm rage, and quiet the child.  God, I’m humbly submit to your will.  And in this moment, I wait for you to move and work on my son’s behalf.  Amen, Amen, and Amen again.

Tags: cancer, god, Iffy, oncologist
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We arrive at the hospital.

He’s a little tired of this routine.  Not happy about having to start back on chemo.  He’s painfully polite to nurses and doctors.

He has to drink 3 cups of this stuff.  Sprite and dye contrast so they can see his insides.  It’s the easiest way to explain it to him.

He observes as they insert the IV.  He tells the nurse that he has good veins.

My mother carries him to the back.  My pregnancy preventing me for joining him for the first time ever.  I always accompany him.  Even when I was going through my own chemo and radiation treatments.  I don’t care how long we’ve been at this, or how many times we’ve done it, I STILL CHOKE UP WHEN HE GOES THROUGH THE DOOR.

Tags: CT Scans, Iffy, IV
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