Posts Tagged ‘god’

Universoul Circus Logo

FOR IMMEDIATE RELEASE

Universoul Circus Honors The Family of Ikenna “Iffy” Ifedobi @ “Breakfast Under The Big Top”

On Wednesday, Aug. 11, 2010 will be a special day in the life of Iffy Jones-Ifedobi, the seven year old Houstonian, fighting for his life against a rare form of Non-Hodgkin’s Lymphoma. Iffy and his family, will be special guests of UniverSoul Circus during its Breakfast Under the Big Top celebration. There, Iffy and family will have a chance to see circus performers up close, and they’ll get an exclusive tour of UniverSoul’s back lot with Ringmaster Shuckey Duckey.

Date: Aug. 11, 2010
Time: 8:00 a.m.
Where: Under the UniverSoul Circus Big Top
(Butler Stadium |13755 S. Main St | Houston , TX 77035)
Cost: The Breakfast Under The Big Top Event is free to the public and breaks will be served from 7 a.m. – 8 a.m.

Additionally, all of the Radio One Houston stations (Majic 102.1, 97.9 The Box and Parise 92.1) will be broadcasting live from the event to encourage Houstonians to help the family.

Donations Can Be Made:

  • At any Unity Bank location under the mother’s name, Shanguala Jones
  • Via the PayPal account link on the family’s blog, www.ziggyjones.com
  • By mail at P.O. Box 1044, Stafford TX, 77497
  • Cash, check, money orders and gift cards accepted in the mother’s name, Shanguala Jones

Visit www.universoulcircus.com for full show times, schedules , and directions. Also follow them on www.facebook.com/universoulcircus or www.twitter.com/usoulcircus .

God is good and Iffy is excited about the event. (more…)

The Storm Rages

Author: ziggy

We’ve been in the hospital for 4 days now.  What started as a routine visit to the clinic for blood work and CT Scan results has evolved into the biggest fight of Iffy’s life.

I received a call on Friday from Iffy’s oncologist stating that the CT scans did not look good.  They told me that my baby has holes in his skull from the cancer eating away at his bones.  The space between his mouth and nose is nothing but tissue.  They don’t even know how he’s been able to eat.

His sinuses are completely gone, and he has holes in his spine and pelvis.  His trachea has been invaded.  Where he should have at least a diameter of 1 cm in order to breathe, Iffy’s airway is measuring less than 3 mms.  This is even more dangerous because his nose and sinuses are completely blocked. They say his airway could constrict, and he could die at anytime. They want to do a tracheostomy to force open his airway.

His heart rate is dangerously low, and frankly, the doctors don’t know how he’s still going.

BUT I DO.  MY GOD IS AN AWESOME GOD!!!!  MY GOD IS MERCIFUL!!!!  AND MY GOD IS IN CONTROL!!!

In this moment, I beg for your prayers and your positive energy.  I beg you to keep us in your thoughts.  I beg you to pray fervently for my child and the other children here on this floor who are suffering.  I beg for your compassion and your passion, because frankly, this is not a time for apathy or false sympathy.  I am afraid, I am terrified, I am exhausted, and I am lost.  But for Iffy’s sake, I go on.

I thank you for your participation in following our story.  Andy, Kelly, Shar-Day, I love and appreciate you for all you’ve done and continue to do.  Iffy sends his love, and we’ll see you all soon.

Sometimes, God will quiet the storm and soothe the child.  Sometimes, God will let the storm rage, and quiet the child.  God, I’m humbly submit to your will.  And in this moment, I wait for you to move and work on my son’s behalf.  Amen, Amen, and Amen again.

And She Speaks

Author: ziggy

“….blah, blah, blah….CANCER.

Blah, blah, blah. BIOPSY NEEDED IMMEDIATELY to confirm…blah,blah, blah.”

I vividly recall that moment.  I was in the moment, I experienced the moment, and I witnessed the moment.  I was quite lucid, but I remember floating above this pitiful little scene.  My husband sat down against the wall and placed his head in his hands.  My mother closed her eyes and began to pray fervently.  Dr. Foster continued talking, her eyes never leaving mine.  Dr. Aziz actually looked like he was going to cry, and I loved him fiercely for that.  Dr. Phillips wrote something on his notepad.  This guy was really getting on my nerves.

Nurse Warm Eyes slipped out quietly. Maybe she was giving us a moment, or maybe taking one for herself.  I realized then that being a pediatric nurse had to be taxing on the spirit.  Especially at times like these.  I wondered just how many of these moments she’d witnessed.

“We’re going to admit him immediately.  I’ve already scheduled a biopsy for tomorrow morning.  We’re also going to need Dad and any other eligible family members to donate blood for possible transfusions as needed.  Do you understand what I’m telling you?”  Dr. Foster spoke softly now.

“Yes.  Children take their father’s blood type.  So he would be the best candidate to donate blood.”  I didn’t know I knew that.

If Dr. Foster was surprised, she didn’t show it.  She simply nodded her head and stood.  I stood too.

“Mom, this is going to be difficult.” She said to me, but she looked at all of us.

“My grandson is strong, and my God is good.”  My mother replied quietly.

Dr. Foster turned to go, promising to return with more news.  Dr. Aziz nodded and followed her.  Dr. Phillips finished what he was writing, and handed it to my mother.  He gave me a brief  look and followed his colleagues.  I hit the floor.

I’d always been one of those folks that donated to cancer charities.  If I had a few extra bucks, I’d toss it into the bucket.  Fundraisers?  No problem.  Those poor people with their poor sick children.  Here, I hope my 20 bucks helps you out.  What a fool I’d been.  When you walk by the shit, its easy and normal to complain about the smell.  But, my God, when you’re LIVING in the shit………well, now.  That’s a whole other thing.

I came to a few minutes later.  My husband was shaken.  My mother was, well, you know how Mamas are.  I noticed she still had the slip of paper Dr. Phillips had given her, and I reached for it.  Curious, I slowly unfolded the paper, preparing to be indignant at his audacity.

“There shall no evil befall thee, neither shall any plague come nigh they dwelling.  For He shall give His angels charge over thee, to keep thee in all thy ways.”Psalms 91:10-11. May God bless and keep you.  Call me anytime. 555-xxx-xxxx. Randy Phillips.

So much for assumptions.  His bedside skills were awesome, and I was wrong, and my son was sick, and we were in the shit.  God give me the strength.

Today is Iffy’s 7th birthday, a day some were not sure he’d see.  My mama knew he’d still be here, I knew he’d be here, and I’m pretty sure Iffy made up his mind to be here.  He’s truly an old soul, teaching me far more than I will ever teach him.  He’s my son, and he’s my hero.  And my God, I love him.  Happy Birthday, Iffy.  Mommy loves you.

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